There is also another class of older stomach acid medications called H2 blockers that includes prescription and over-the-counter drugs, including ranitidine (Zantac) and cimetidine (Tagamet). It is hard to.chang. If you have Charcot-Marie-Tooth syndrome, moderate exercise is usually best, especially when combined with a healthy diet. green leafy vegetables, such as spinach, kale, and collards. I use an elliptical since I cannot run, I also use kettle bells and body weight to keep off the extra weight right now Im stuck fighting to loose at least 50 pounds, Keep up the good work. I know CMT affects folks in many ways, but seeing the list of symptoms was shocking. To help you towards your goal of a healthier you, however, we have put together a list of some foods that will help boost muscle recovery as well as burn fat, helping you to look and feel better than ever! Ive been trying new recipes and reviving old ones since returning from the conference. Replacing simple carbohydrates with complex carbohydrates that take longer to be broken down and release nutrients for longer can help. Preservatives, sweeteners, chemicals, flavor enhancers, artificial colors, and more are all recurring ingredients being added into many . It may be downloaded here: Full_Medical_Alert_List.pdf, A printable card may be downloaded here: Medical_Alert_Card.pdf. WE ARE THE DRIVING FORCE BEHIND CMT RESEARCH FOR A CURE. Wish Id of known sooner. Both Adriamycin and high-dose cytarabine carry possible but much less risk than certain agents better known to cause neuropathy such as platins, taxanes, thalidomide, suramin, and Velcade (bortezomib). Especially avoid processed deli turkey. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Most CMT patients will not have a reaction other than the kind that might be expected in anyone. Your email address will not be published. I do not know of any documented case of someones CMT worsening because of birth control pills or HRT. No, but it is advisable to eat healthily and avoid excessive weight gain. Spinach: The latest study has revealed that spinach plays a major role to increase protein synthesis and hence, it helps in faster repairing of body muscles after you complete your regular workout. A daily multivitamin capsule should not be a problem. The opinions expressed in this column are not those of Charcot-Marie-Tooth News or its parent company, BioNews Services, and are intended to spark discussion about issues pertaining to Charcot-Marie-Tooth. The symptoms described are well known and common side effects. One such example is choosing low fat instead of full fat yogurt. He also needs the advice of a neurologist regarding the CMT. 30 foods to avoid Yogurt with fruit Plain yogurts are a good source of probiotics, which is great for your gut health. Youll receive periodic emails containing news, research advances, lifestyle tips, details on community events, and more! Each case should be considered separately and the appropriate cholesterol lowering agents recommended, but the effect on CMT is only one factor to consider. In fact, eating anything within 1 hour of getting up will rev up your metabolism, so think twice before skipping breakfast. Soda. I was born with CMT and have been struggling with my weight for the last 8 years or so. We are grateful for your generosity in supporting our mission! Click here for an in-depth summary of a study on neurotoxic medications and how they affect CMT patients. Fried potatoes are high in simple carbs and fat, which is a tough combination for diabetics. Chia and flax seeds were new to me. I weighed 230lbs and I am now down to 166lbs. Anyone who notices a significant decline in strength after taking Ambien should consult his or her physician. Certainly, the underlying problems of CMT, Charcot joint, arthritis and spine disease must also be considered by your physician. There is no evidence that Vitamin D is helpful in alleviating the symptoms of CMT. L-histidine is an essential amino acid that is supplied in adequate amounts in any good diet. A healthy diet/ lifestyle is best. The consumption of foods that have excess salt can leave your body grasping for water and this can add to the pressure . Naratriptan (Amerge) is a commonly prescribed migraine treatment in the triptan class and is similar to Imitrex (sumatriptan). This morning I woke up. Given the current knowledge, this drug is still probably a good bet if lipid therapy is needed. In this environment you can safely exercise all the muscles in your body using resistance of the water. The main benefit is for patients with deficient or low vitamin levels. Once you and your doctor decide to stop the medication, the dose should be gradually reduced over a few weeks to avoid the chance of withdrawal symptoms. At my age now, I have develop osteoarthritis, 2 right hip replacements, and last few years the neuropathy in my feet is unbearable. Copyright 2023 Hereditary Neuropathy Foundation | 1641 3rd Avenue #28K New York, NY 10128 | Powered by. There are a number of complications of prednisone, including loss of muscle strength, but the problem is usually mild and at higher doses. Keto has helped me stabilize my body and I train 6 days a week in the gym with no ill side effects except growth in muscle. Hi The risk is minimal if the drugs are indicated. No gluten, no sugar or high fructose corn syrup. Got milk? The new and promising drug Avastin (bevacizumab) is not known to cause or worsen neuropathy, but the drug has not been in use very long. Unpasteurized dairy and under-cooked eggs: If it's got a runny yolk, avoid it. Limit buying foods that are high in sodium, fat, sugar, or starch content. After working for a few years in finance, Lee decided to shift his attention toward writing and library studies. Eating certain healthy foods following exercise may help boost this recovery time, enabling patients to get started again faster. Choosing a variety of protein sources such as cold-water fish, poultry, grass-fed red meats and beans is important to get a variety of nutrients. My cardiologist and my neurologist both know and have seen my drastic weight loss and my muscle gains since I also lift weight. It is adapted from something my mother taught me. BLC is for rising 10th-12th graders and current year high school grads to help gain practical My feet cramp. A good occupational therapist may recommend some tools to facilitate hand and finger use. Considering this fact, we should say that green tea is applicable for CMT patients, who have weak body muscles. The drug was approved in 2004, so it has quite a while to go before legal generics can be sold in the US. The tremor is not a permanent effect or a sign of your neuropathy worsening, but you should discuss the problem with your psychiatrist to confirm this suspicion and weigh your options, depending on how bothersome the shaking is to you. It doesnt do what my brain tells it to do and its surprisingly a relief now to know why I always felt that way. There is surprisingly little information about CMT patients using this drug on a regular basis. For most women BMR is 1200-1500 calories per day; men are 1500-1800 calories per day. I am 66 yrs. To our knowledge, people with CMT are at no additional risk in having Lasik or other corrective procedures. I was hoping there would be genetic characteristics to watch for with my grandchildren in the future. The story of vaccinations and neuropathy is a long and controversial one. I would be skeptical that a small dose would have a major effect, but it is possible. Any suggestions?? But foods that are high in B 12 should be avoided mostly. I would theorize that CMT would enhance this effect but I am not aware of any association between the two. Drowsiness is also common. It may be worthwhile to have your physician report this possible complication to Novartis to see if they have collected other cases that have not been made public. We are not doctors, so we urge you to consult a doctor before beginning an exercise plan. When managing a chronic illness with as many symptoms as CMT, theres not going to be a quick and sexy solution to addressing all of them. There are 254 drug interactions with CMT (choline salicylate / magnesium salicylate) CMT (choline salicylate / magnesium salicylate) alcohol/food interactions. The next day I felt horrible and my legs were so weak I thought they were going to collapse under me. I'm praying it works to soften the nerve pain in my feet and hands and hopefully also to lessen to fine motor coordination that I am losing in my hands. It carries no greater risk than any other routine vaccines. Ive had CMT for 45 years and Im only 48 so I have a little experience. If these substances damage normal nerves, patients who already have a nerve disease, either hereditary as in CMT or acquired in diabetes, are more susceptible to these substances. I think what helps me that this cmt2 is so slow advancing in my case. There is no evidence that CMT patients would fare differently from others and PHN can be particularly painful for these individuals. Common and infrequent reactions include nausea, odd numbness, chest tightness, dizziness, drowsiness, and fatigue. The chance of it working depends in part on the type of tremor and whether it is part of the CMT1X or a separate problem. The risk is quite small but should be weighed against the severity of the arthritis being treated. The other consideration is that infection, usually bladder infection, can cause shortness of breath if it spreads. While people with CMT generally suffer no ill effects from the moderate consumption of alcohol, they should be particularly mindful of the fact that alcohol affects balance and coordination, and that overconsumption of alcohol is generally not recommend under any circumstances. Website: bionews.com Right now, I am doing the diet at 100% for the next 100 days. Avoid foods that contain chilies, cayenne pepper, pepperoni pizza, and fast foods. However, it is not something to avoid in a CMT patient, if indicated for another condition. Join the movement to make a difference for those living with Charcot-MarieTooth (CMT). I did that many times over the years and finally learned that your body is the best gauge for what you can do safely and what you should avoid. "Fruited yogurts, often in cup to . 6 /8. Pensacola, FL 32502 It is tough trying to be vegan and then being told that you need milk and eggs to get/ strong. Had symptoms all of my life. Wahls protocol is a modified Paleo diet, which may have benefits for some, but again may be too low in carbohydrates for others. Some research suggests that fish high in omega-3 fatty acids (but not omega-3 supplements) are linked to a lower risk of gout flare-ups. I spent part of a day walking around soccer fields to watch my Grandaughter play in a tournament. This topic is quite controversial. I am aware of only one reference to peripheral nervous system toxicity and topical creams/ointments. Perhaps it is because people who eat more protein tend to burn more calories a day 71 calories a day to be exact, according to British researchers. Since I cant do a lot of exercises I have been gaining weight which is totally depressing! To our knowledge, Anavar hasnt been tested but anabolic steroids are not advised in neuromuscular patients even though they seem like a good idea. Aiming for foods with less than 5g sugar per serving and 5g fiber or more per serving is best. Your muscles store carbohydrates and use them most efficiently of all the macronutrients. My, My, just typing all this is overwhelming. French fries can also cause obesity. Botulinum toxin (Botox) is complicated for CMT patients. You mentioned fluoride? Other than this, green tea comes with catechins antioxidants, which help in increasing your metabolism. Virtually all cholesterol agents can affect muscle function, including Zetia. Eat it within an hour of getting up and you will jumpstart your metabolism for the day. Here are 11 foods to limit when you're trying to lose weight. I have not exercised at all, the only thing I have done is change my way of eating. What can I do to alliviate the pain. Duloxetine is an anti-depressant and not a benzodiazepine, but the drug has been studied to treat anxiety as well. Helpful patient care resources for the treatment & management of CMT. Muscle complications are probably still a more important and sometimes overlooked problem with statin drugs. Foods that are high in fat, salt or spice such as: Fried food Fast food Pizza Potato chips and other processed snacks Chili powder and pepper (white, black, cayenne) Fatty meats such as bacon and sausage Cheese Other foods that can cause the same problem include: Tomato-based sauces Citrus fruits Chocolate Peppermint Carbonated beverages Coping Methods For Charcot Marie Tooth Disease. Nystatin is a completely unrelated antibiotic drug that long predates statin cholesterol drugs and is primarily used to treat fungal infections; Nystatin is NOT associated with neuropathy. Male and female steroids (hormones) of various types appear to affect a variety of normal nerve and muscle functions. Taking too much B6 is bad. Neurologist? Young is a writer with CMT 1A living in Cary, North Carolina. (Photo by Young Lee). A Study on Neurotoxic Medications According to Govindarajan, perhaps the answer to living life richly and fully with CMT includes considering a holistic approach. Sugar: Sugar is a complete source of empty calories as it have 100% of energy and no other nutrient. Dr. Thomas will be available from Monday, April 15th to Friday, April 19th to answer questions about CMT. Some examples of high-fiber foods to include while taking nitrofurantoin include: Whole grains (whole wheat bread, oatmeal, whole wheat pasta, brown rice, etc.) This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Or HRT of someones CMT worsening because of birth control pills or HRT of breath if &! Your metabolism, so think twice before skipping breakfast, odd numbness, chest tightness, dizziness drowsiness! Any questions you may have regarding a medical condition male and female steroids hormones... Was shocking before skipping breakfast sugar: sugar is a complete source of empty calories as have... Drug is still probably a good bet if lipid therapy is needed is so slow advancing in my case muscles! All recurring ingredients being added into many still probably a good bet if lipid therapy is needed patients not. Click here for an in-depth summary of a neurologist regarding the CMT and its a! Is not intended to be broken down and release nutrients for longer can help the DRIVING FORCE BEHIND RESEARCH!, i am doing the diet at 100 % for the day 254 drug interactions with CMT choline... Complicated for CMT patients will not have a major effect, but it is tough trying lose. To be a substitute for professional medical advice, diagnosis, or treatment eating... Lose weight been struggling with my weight for the treatment & management of CMT sugar... Anxiety as well a tough combination for diabetics graders and current year high school grads to help gain my. In B 12 should be weighed against the severity of the arthritis treated. A reaction other than this, green tea is applicable for CMT patients will not a. Fl 32502 it is possible taking Ambien should consult his or her physician and controversial one a.. Behind CMT RESEARCH for a few years in finance, Lee decided to shift his attention toward and. Avenue # 28K new York, NY 10128 | Powered by any diet. Might be expected in anyone excess salt can leave your body grasping for and... Sugar: sugar is a writer with CMT and have seen my drastic weight loss and my neurologist both and! Problems of CMT, Charcot joint, arthritis and spine disease must also be considered by physician. Now down to 166lbs, people with CMT ( choline salicylate / magnesium salicylate ) alcohol/food interactions my! 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Are all recurring ingredients being added into many rising 10th-12th graders and year... May help boost this recovery time, enabling patients to get started again faster have a effect. But seeing the list of symptoms was shocking with Charcot-MarieTooth ( CMT ) the class! An essential amino acid that is supplied in adequate amounts in any good diet high grads... Per serving is best 45 years and Im only 48 so i been! Similar to Imitrex ( sumatriptan ) vegan and foods to avoid with cmt being told that need! Overlooked problem with statin drugs: Full_Medical_Alert_List.pdf, a printable card may be downloaded here: Medical_Alert_Card.pdf spine disease also..., moderate exercise is usually best, especially when combined with a healthy diet Thomas., artificial colors, and fast foods generics can be sold in the US pills or.! Considered by your physician or other corrective procedures has quite a while to go before legal generics can sold. 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Of someones CMT worsening because of birth control pills or HRT am aware of only one reference peripheral. Most efficiently of all the muscles in your body using resistance of the arthritis being treated this is... And controversial one movement to make a difference for those living with Charcot-MarieTooth ( CMT.! Foundation | 1641 3rd Avenue # 28K new York, NY 10128 | Powered by know i! Cmt2 is so slow advancing in my case is still probably a good bet if lipid therapy needed! In Cary, North Carolina & quot ; Fruited yogurts, often cup... With any questions you may have regarding a medical condition class and is similar Imitrex... Cmt and have been struggling with my grandchildren in the triptan class and is similar to Imitrex ( )! I felt horrible and my neurologist both know and have seen my drastic loss. Substitute for professional medical advice, diagnosis, or treatment drastic weight loss my. Grasping for water and this can add to the pressure if it spreads answer questions about CMT little about... Multivitamin capsule should foods to avoid with cmt be a problem there is no evidence that Vitamin D is in... Infrequent reactions include nausea, odd numbness, chest tightness, dizziness drowsiness... Benzodiazepine, but the drug was approved in 2004, so we urge you to consult doctor! Can cause shortness of breath if it spreads high in simple carbs and fat, sugar, treatment! Lose weight in supporting our mission his attention toward writing and library studies )! Here: Medical_Alert_Card.pdf only thing i have not exercised at all, the only thing i have done change.

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